A marathon not a sprint...

Things are going OK. Packed schedule, and Kayla is wore out! Still in the process of testing and consultations. Today is -10°F. The cold is ridiculous!
We have met new friends who are battling their own journey. God knows who and what we need at exactly the time we need them. 
The lumbar puncture showed her csf pressure 3x's what it should be. We will know more Monday when all of the neuro tests ordered are back. 
Please continue to pray